Saturday, June 15, 2013

What a week

I can't believe it's been a week already. Almost. Things are finally looking up. I've been quite stressed out, because Monkeyman wasn't doing as well as I thought he would. I prepared myself for a child who'll be tired and vomitting and not eating for a day (like always after anaesthesia). Then a day of having a sore throat and maybe some tears. Then a child who miraculously starts to look well, sleep well, becomes active and healthy and like a normal 5-year old little boy. Instead, I got a child that DIDN'T throw up (yay for valoid during the op!!), had extremely little throat pain and ate very well, like always, almost immediately.

And was MORE tired than usual. :-( This caught me totally off guard. I did NOT expect that. From after the operation, Monkeyman has laid down. He would sleep 12-13 hours solidly, then wake up and just lay in bed (very strange for him). Usually, he would jump up the moment he opens his eye (the reason why Mr N and Boeboe have to be sooooo quiet in the mornings when eating breakfast before school, because if they make one loud noise, Monkeyman would wake up and there's no sleeping some more with him!). This week, he would just lay in bed until long after 9am. Then he'd move his blanket and pillow to the couch in the sittingroom, and there he'd lay all day. Either playing iPad or watching tv. He'll stand up to go to the bathroom or sit up to eat. It wasn't nice to see.

By Thursday he did play once in the morning for about 30 minutes on the carpet, and again in the evening. So that gave me some hope. Friday, I went out for breakfast with friends. He was so excited, because his best friend was going with. We were there for 3 hours. He played most of the time on the carpet (pushing cars or lying down on the plastic matresses playing with the other plastic cubes). But still needed to lie down (on his seat!) twice. Like in lying down flat. Afterwards, he told me that was when he was so tired, he just felt like sleeping. And of course, he sat while eating. So all in all, probably better than the previous days, but still not really a good sign. :-( It worried me, seeing a 5-year old lying down in a place like Spur (family restaurant) metres away from an exciting play area where his best friend was running around. Rest of the day he just lied down at home again.

Then, today, he played all day long!! Sitting down, but still, he played! He moved from couch to chair to carpet, always sitting, but still playing. He played computer, iPad, Barbies with his sister, etc. I was really happy to see that. :-) So hopefully, he's at long last now on the mend. If we can now just get rid of those circles under the eyes! They're so much darker now than a week ago. And he has this veins that's prominent from the corner of his mouth down to the neck. It looks like he drew on himself with a blue pen. His jugular veins is also very pronounced, which is apparently a sign of pulmonary hypertension. So I'm worried that his heart was taking strain this week. Really scary. So I'll be so relieved when he's back to his old self. Or better yet...when that improvement the doctor spoke about, will become apparent!! He said we'll notice it immediately. :-( Well, quite the opposite happened. So sad. And so worrysome.

Tomorrow is Fathers Day, and we're visiting family. So let's hope he'll be playing around and not sitting/lying down all day.

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