Tuesday, December 14, 2010

Eyes, teeth and telephone calls

Some more check-ups. It's just never ending with a special-needs child, is it?!

Today we went to the eye specialist, or ophthalmologist. Both me and Boeboe. He diagnosed me with the beginning stages of glaucoma, though there is no pressure yet. So I have to see him again in 6 months time, and thereafter yearly until such time I experience rising pressure. In which case he'll start to treat me. For Boeboe we had much better news. He said her cornea's are still 100% fine, even though she has alacrima (lack of crying tears – from birth!). He said he wants to see her yearly, just to make sure her cornea's stay in a good condition. In the meantime, he declared her eyes 100% fit and well...:-) No need for glasses even! Whoohoo!!

This afternoon we went to the dentist, and we had some bad news this time. Boeboe has EIGHT cavities!! Now, tell me. How can this be NORMAL for a child that brushes twice a day, and do not eat sweets every day??? The dentist believes it's due to her reflux. But that means it's not under control? Urgh! When does she get a break, this little girl of mine? She's a real trooper though. Sat in the chair so that they could fix 2 of the cavities live (without local anaesthesia). It's baby teeth, so it didn't hurt. The eighth cavity which she'll fix last, is on a permanent molar, so that will require an injection...:-( She scheduled 3 more visits. We'll fix 2 cavities with every visit during January. What a busy January await us!

Well, now to today's exciting news!!! In between the morning's ophthalmologist visit, and the afternoon's dentist visits, we had a call. Now first let me explain. After the urologist told us to start looking at other neurosurgeons, I made a list of a few I knew of, and called the first one on the top. He's in our closest hospital (15 minutes drive) so I thought I'd start there. I liked the sound of his name...:-) Well, I told the receptionist the whole story, about the urologist believing my daughter may have an occult tethered cord, but we don't want to make an appointment with one neurosurgeon after the other, trying to find one that knows and believes in occult tethered cord. I really do not fancy going from one to the next, listening to another speech like the one from dr M that pleaded with us not to cut, because she WILL outgrow this. I simply cannot be deterred from what I believe in just like that, and patiently sit and fold my arms like I did when Boeboe was age 3, age 4 and age 5, without trying to help her. I truly believe we're past waiting, past outgrowing it.

In any case, the receptionist was extremely kind and sweet, and said she'll speak to her neurosurgeon, and get back to me on Wednesday. I kinda didn't expect too much, having developed a fatalistic attitude during the past year where we've been disappointed in the medical community over and over again. Even laughed at once, and called a liar in my face. And told my daughter is lying to me. But, let me not dwell on that now.

So, today the receptionist called me (and it's only Tuesday)! She said she spoke to her neurosurgeon, dr L, and that he are very worried about my daughter, and that we please must come in TOMORROW!!! WOW WOW WOW WOW WOW. Now, if you don't live in South Africa, you won't realise how amazing this is. You simply DO NOT GET INTO A SPECIALIST THAT SOON! It really totally blew my mind. Compared to the service we had previously from specialists, suddenly we had someone that was interested and WORRIED about my daughter, so much so, that he's pushing us in! And not within weeks or months, but within one day! I was overwhelmed, and told the receptionist as much, and thanked her profusely, promising her to be there at 9:30am as she requested. Could this be it? Could this really be it? That at long last, we've found a neurosurgeon that's going to help us? Let's pray so, indeed!

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