Boeboe has her check-up with the urologist tomorrow. She received botox injections into her bladder two weeks ago, under anaesthesia. For her uninhibited neurogenic bladder. The doctor is going to check that she’s not retaining any fluid in the bladder after emptying. I’m a little bit nervous, because if she is, it would mean she’ll need to catherise herself. She’s had 2 catherisations before, and both were extremely horrid. She screamed like a banshee that’s being cut into little pieces from the bottom up. With the second one, 3 of us were necessary to pin her down…:-( We were unable to organise a playdate for Mr N, our eldest boy, so he and little monkeyman (the baby brother) will need to tag along. *sigh* Fortunately my husband decided to come as well, so I won’t have to cope with all 3 of them on my own at a doctor’s office.
I’m also going to ask Dr W if the fact that the botox isn’t working 100%, means her neurogenic bladder may not be a developmental problem? I’m still pretty convinced it’s an occult tethered spinal cord. But he’s reluctant to admit it, because her feet problems aren’t “bad enough” accordingly to him. As if falling on a daily basis, isn’t enough…:-( Why do moms these days seem to have to convince doctors that something is wrong with their children? Do they think we want there to be something wrong? Just the thought of my baby having a tethered cord and needing a back operation is enough to make me want to vomit. But should I just leave it be, if that is what I think it is? Because if it is, waiting 2 years to see if botox will “heal” her, could cause irreversible damage…:-(
Well, let’s see what the urologist, Dr W, says tomorrow…
No comments:
Post a Comment